Living with Alpha‑1
Since Alpha‑1 is fairly rare, it often takes a while for it to be diagnosed. Finding out you have Alpha‑1 may bring up mixed feelings about what it all means and what to do next. But working with your healthcare team can help you learn to manage your condition. It’s important to exercise, eat healthy, get enough sleep, and follow the plan your healthcare team has recommended. It’s also important to have a community of support that includes family and friends.
Managing life with Alpha‑1
Watch Jim and Julie share what changes they’ve made in their lives since diagnosis.
Talking to your doctor about Alpha‑1
A doctor or healthcare provider will be able to advise you on next steps and put together a personalized care plan.
Here are questions to help with that conversation:
A resource for Alpha‑1
Even though Alpha‑1 is a rare disorder, support and information are available.
Alpha‑1 Foundation is a not-for-profit corporation that is dedicated to finding a cure.
Here are some other good places you can go for help:
The COPD Foundation helps improve the lives of people living with COPD and other lung diseases.
The American Lung Association is working to make the world a place that is free of lung disease.
The National Organization for Rare Disorders (NORD) is a source of support and information for those affected by rare diseases.